September 1, 2026
—
September 30, 2026
Recurs yearly
2026 Theme
No official theme announced
Campaign Representation
Officially represented by the Burgundy Ribbon.
Campaign Description
Focuses on improving long-term management, reducing complications, and increasing awareness of this inherited blood disorder that disproportionately affects people of African descent, including a high burden in Nigeria.
Key Priorities
Promoting premarital and newborn genotype screening.
Ensuring reliable access to hydroxyurea and pain management.
Educating schools and communities on crisis prevention and management.
Advocating for bone marrow transplant and advanced therapies.
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